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Oculocutaneous albinism: identifying and overcoming barriers to vision care in a Nigerian population.
[oculocutaneous albinism]
To
assess
eye
care
service
utilization
,
and
identify
access
barriers
in
a
south-
eastern
Nigerian
albino
population
.
The
study
was
a
population-based
,
cross-sectional
survey
conducted
in
Enugu
state
between
August
,
2011
and
January
,
2012
.
Using
the
data
base
of
the
state
's
Albino
Foundation
and
tailored
awareness
creation
,
persons
living
with
albinism
were
identified
and
recruited
at
two
study
centres
.
Data
on
participants
'
socio-demographics
,
perception
of
vision
,
visual
needs
,
previous
eye
examination
and
or
low
vision
assessment
,
use
of
glasses
or
low
vision
devices
were
collected
.
Reasons
for
non-utilisation
of
available
vision
care
services
were
also
obtained
.
Descriptive
and
comparative
statistics
were
performed
.
A
p
<
0
.
05
was
considered
statistically
significant
.
The
participants
(
n
=
153
;
males
70
;
females
83
;
sex
ratio
:
1
:
1
.
1
)
were
aged
23
.
46
+
10
.
44
SD
years
(
range
6
-
60
years
)
.
Most--
95
.
4
%
of
the
participants
had
no
previous
low
vision
assessment
and
none--
0
.
0
%
had
used
low
vision
device
.
Of
the
participants
,
82
.
4
%
reported
previous
eye
examination
,
33
.
3
%
had
not
used
spectacles
previously
,
despite
the
existing
need
.
Ignorance--
88
.
9
%
and
poor
access--
8
.
5
%
were
the
main
barriers
to
uptake
of
vision
care
services
.
In
Enugu
,
Nigeria
,
there
is
poor
awareness
and
low
utilization
of
vision
care
services
among
people
with
albinism
.
The
identified
barriers
to
vision
care
access
are
amenable
to
awareness
creation
and
logistic
change
in
the
provision
of
appropriate
vision
care
services
.
Diseases
Validation
Diseases presenting
"eye examination"
symptom
oculocutaneous albinism
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