Rare Diseases Symptoms Automatic Extraction
Home
A random Abstract
Our Project
Our Team
Junctional epidermolysis bullosa incidence and survival: 5-year experience of the Dystrophic Epidermolysis Bullosa Research Association of America (DebRA) nurse educator, 2007 to 2011.
[junctional epidermolysis bullosa]
Junctional
epidermolysis
bullosa
(
JEB
)
is
a
particularly
devastating
type
of
epidermolysis
bullosa
,
especially
in
the
newborn
period
.
Data
about
the
number
of
new
cases
of
JEB
in
the
United
States
were
collected
from
the
records
of
the
Dystrophic
Epidermolysis
Bullosa
Research
Association
of
America
(
DebRA
)
nurse
educator
.
Seventy
-
one
children
with
JEB
were
reported
to
have
been
born
in
the
5
years
between
2007
and
2011
,
reflecting
an
incidence
of
at
least
3
.
59
per
million
per
year
,
significantly
higher
than
previously
estimated
(
2
.
04
per
million
)
.
There
was
a
high
prevalence
of
morbidity
and
infant
mortality
of
at
least
73
%
,
as
52
of
the
71
cases
proved
fatal
by
June
2012
.
These
data
emphasize
the
need
for
future
research
to
develop
treatment
and
ultimately
a
cure
for
this
disorder
.
Diseases
Validation
Diseases presenting
"especially in the newborn period"
symptom
dystrophic epidermolysis bullosa
junctional epidermolysis bullosa
You can validate or delete this automatically detected symptom
Validate the Symptom
Delete the Symptom