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Frequency and circumstances of falls in people with inclusion body myositis: a questionnaire survey to explore falls management and physiotherapy provision.
[inclusion body myositis]
To
survey
the
incidence
and
circumstances
of
falls
for
people
with
inclusion
body
myositis
(
IBM
)
in
the
UK
,
and
to
investigate
the
provision
of
physiotherapy
and
falls
management
.
Postal
questionnaire
survey
.
Participants
completed
questionnaires
at
home
.
Ninety
-
four
people
diagnosed
with
IBM
were
screened
against
the
inclusion
criteria
.
Seventy
-
two
potential
participants
were
sent
a
questionnaire
,
and
62
were
completed
and
returned
.
Invited
participants
were
sent
an
adapted
Falls
Event
Questionnaire
pertaining
to
falls
,
perceived
causes
of
falls
and
the
provision
of
physiotherapy
.
Questionnaires
were
returned
anonymously
.
The
proportions
of
respondents
who
reported
a
fall
or
a
near
fall
,
along
with
the
frequencies
of
falls
and
near
falls
were
calculated
.
Descriptive
data
of
falls
were
collected
pertaining
to
location
and
cause
.
Data
analysis
was
performed
to
investigate
provision
of
physiotherapy
services
.
The
response
rate
was
86
%
[
62
/
72
,
mean
(
standard
deviation
)
age
68
(
8
)
years
]
.
Falls
were
reported
by
98
%
(
61
/
62
)
of
respondents
,
with
60
%
(
37
/
62
)
falling
frequently
.
In
this
study
,
age
was
not
found
to
be
an
indicator
of
falls
risk
or
frequency
.
Twenty
-
one
percent
(
13
/
62
)
of
respondents
had
not
seen
a
physiotherapist
in
relation
to
their
IBM
symptoms
,
and
of
those
that
had
,
31
%
(
15
/
49
)
had
not
seen
a
physiotherapist
until
more
than
12
months
after
IBM
was
diagnosed
.
Only
18
%
(
11
/
61
)
of
fallers
reported
that
they
had
received
falls
management
input
.
Falls
are
a
common
occurrence
for
people
with
IBM
,
independent
of
age
and
years
since
symptoms
first
presented
,
and
are
poorly
addressed
by
appropriate
physiotherapy
management
.
National
falls
guidelines
are
not
being
followed
,
and
referral
rates
to
physiotherapy
need
to
improve
.
Diseases
Validation
Diseases presenting
"myositis"
symptom
focal myositis
inclusion body myositis
malignant atrophic papulosis
pyomyositis
systemic capillary leak syndrome
This symptom has already been validated