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[Congenital toxoplasmosis: long-term ophthalmologic follow-up praised by patients].
[congenital toxoplasmosis]
Ocular
lesions
of
congenital
toxoplasmosis
may
occur
and
relapse
unpredictably
even
a
long
time
after
birth
.
There
is
no
consensus
concerning
the
necessity
or
timing
of
ophthalmologic
follow-up
for
these
patients
.
We
surveyed
adults
with
congenital
toxoplasmosis
followed
regularly
since
birth
,
in
order
to
learn
their
perceptions
of
this
follow-up
.
The
goal
of
this
study
was
to
provide
doctors
with
patient-reported
information
on
how
they
perceived
the
long
-term
monitoring
of
their
disease
.
Enrolled
patients
were
given
a
two
-question
questionnaire
addressing
the
way
they
perceived
the
long
-term
follow-up
and
their
attitudes
toward
continuing
it
.
Eligible
patients
had
to
be
18
years
or
older
and
to
have
undergone
ophthalmologic
follow-ups
,
including
funduscopy
,
every
year
since
birth
.
The
last
ophthalmologic
examination
had
to
be
within
one
year
of
the
patient
's
inclusion
in
the
study
.
Of
the
102
patients
finally
included
in
the
study
,
98
%
stated
that
the
follow-up
was
useful
and
92
%
reassuring
.
Among
the
11
%
of
patients
who
found
the
follow-ups
frightening
,
the
proportion
of
patients
with
low
visual
acuity
and
low
score
on
the
visual
function
test
was
significantly
higher
than
among
the
others
.
All
patients
except
two
wished
to
continue
with
regular
follow-up
.
Without
general
agreement
or
guidelines
on
how
patients
with
congenital
toxoplasmosis
should
be
monitored
,
the
patient
's
wishes
are
important
in
making
a
decision
.
Our
study
brought
out
a
clear
fact
;
the
majority
of
patients
found
long
-term
follow-up
useful
and
reassuring
and
wished
to
continue
.
