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Parental preference or child well-being: an ethical dilemma.
[proteus syndrome]
An
ethical
dilemma
that
is
not
uncommon
to
encounter
when
caring
for
children
occurs
when
parental
preference
does
not
appear
to
be
in
the
child
's
best
interest
.
Challenges
facing
the
health
care
team
are
further
amplified
when
the
family
's
cultural
background
does
not
match
that
of
the
team
.
A
case
study
will
be
used
to
illustrate
the
challenges
of
a
pediatric
palliative
care
ethical
dilemma
further
complicated
by
cultural
diversity
.
Review
of
the
child
's
medical
condition
,
patient
/
parent
preferences
,
quality
of
life
,
and
contextual
features
will
be
followed
by
an
analysis
and
recommendations
for
resolution
of
this
challenging
situation
.