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Attitudes towards end-of-life decisions and the subjective concepts of consciousness: an empirical analysis.
[locked-in syndrome]
People
have
fought
for
their
civil
rights
,
primarily
the
right
to
live
in
dignity
.
At
present
,
the
development
of
technology
in
medicine
and
healthcare
led
to
an
apparent
paradox
:
many
people
are
fighting
for
the
right
to
die
.
This
study
was
aimed
at
testing
whether
different
moral
principles
are
associated
with
different
attitudes
towards
end-of-life
decisions
for
patients
with
a
severe
brain
damage
.
We
focused
on
the
ethical
decisions
about
withdrawing
life-sustaining
treatments
in
patients
with
severe
brain
damage
.
202
undergraduate
students
at
the
University
of
Padova
were
given
one
description
drawn
from
four
profiles
describing
different
pathological
states
:
the
permanent
vegetative
state
,
the
minimally
conscious
state
,
the
locked-
in
syndrome
,
and
the
terminal
illness
.
Participants
were
asked
to
evaluate
how
dead
or
how
alive
the
patient
was
,
and
how
appropriate
it
was
to
satisfy
the
patient
's
desire
.
We
found
that
the
moral
principles
in
which
people
believe
affect
not
only
people
's
judgments
concerning
the
appropriateness
of
the
withdrawal
of
life
support
,
but
also
the
perception
of
the
death
status
of
patients
with
severe
brain
injury
.
In
particular
,
we
found
that
the
supporters
of
the
Free
Choice
(
FC
)
principle
perceived
the
death
status
of
the
patients
with
different
pathologies
differently
:
the
more
people
believe
in
the
FC
,
the
more
they
perceived
patients
as
dead
in
pathologies
where
conscious
awareness
is
severely
impaired
.
By
contrast
,
participants
who
agree
with
the
Sanctity
of
Life
(
SL
)
principle
did
not
show
differences
across
pathologies
.
These
results
may
shed
light
on
the
complex
aspects
of
moral
consensus
for
supporting
or
rejecting
end-of-life
decisions
.
Diseases
Validation
Diseases presenting
"the minimally conscious state"
symptom
locked-in syndrome
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