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A random Abstract
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Living with Kallmann Syndrome - Analysis of Subjective Experience Reports from Women.
[kallmann syndrome]
Five
women
were
questioned
on
their
experiences
with
Kallmann
Syndrome
(
KS
)
in
thematically
focused
,
open
interviews
.
This
investigation
complements
the
study
of
the
experiences
of
men
with
KS
1
.
The
results
show
that
the
consequences
and
pressures
of
KS
extend
beyond
the
somato-medical
field
and
that
those
affected
are
also
burdened
by
mental
and
psycho-social
impacts
.
The
pressures
experienced
by
those
affected
include
a
distorted
body
image
resulting
from
the
lack
of
physical
development
,
which
in
turn
leads
to
difficulties
in
developing
a
healthy
feeling
of
self-worth
.
Furthermore
,
particular
attention
should
be
paid
to
the
influence
of
hormone
therapy
on
mood
and
libido
during
medical
treatment
.
Some
of
the
affected
women
reported
experiencing
depressive
moods
and
low
libido
,
and
pressures
in
their
relationship
associated
with
this
.
The
affected
women
wanted
KS
to
be
viewed
as
a
whole
in
order
to
achieve
better
handling
.
In
particular
,
attentive
handling
of
issues
relating
to
fertility
was
important
to
them
.
Additional
relevant
support
included
offers
of
confidential
discussions
,
and
offers
of
psychotherapy
and
,
where
required
,
sex
education
or
sex
therapy
.
