Rare Diseases Symptoms Automatic Extraction
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Gene patents and licensing: case studies prepared for the Secretary's Advisory Committee on Genetics, Health, and Society.
[canavan disease]
Researchers
at
the
Center
for
Public
Genomics
at
Duke
University
analyzed
how
patenting
and
licensing
affect
clinical
access
to
genetic
testing
in
the
United
States
.
The
research
was
requested
by
the
Secretary
's
Advisory
Committee
on
Genetics
,
Health
,
and
Society
.
Conditions
studied
were
breast
and
ovarian
cancers
,
colon
cancers
,
Alzheimer
disease
,
cystic
fibrosis
,
hearing
loss
,
hereditary
hemochromatosis
,
long
QT
syndrome
,
spinocerebellar
ataxia
,
Tay-
Sachs
disease
,
and
Canavan
disease
.
Diseases
Validation
Diseases presenting
"hearing loss"
symptom
22q11.2 deletion syndrome
achondroplasia
adrenomyeloneuropathy
alexander disease
benign recurrent intrahepatic cholestasis
canavan disease
cohen syndrome
congenital toxoplasmosis
dentinogenesis imperfecta
fabry disease
familial mediterranean fever
heparin-induced thrombocytopenia
hirschsprung disease
holt-oram syndrome
homocystinuria without methylmalonic aciduria
hydrocephalus with stenosis of the aqueduct of sylvius
kabuki syndrome
kallmann syndrome
neonatal adrenoleukodystrophy
pendred syndrome
von hippel-lindau disease
wolf-hirschhorn syndrome
This symptom has already been validated